My heart goes out to everyone who lost their homes and who are affected by this. Luckily my home did not get hit just some minor things that can be fixed. We were without power for three days. Thank god for generators we were able to get power to save the food and drinks.
I was a bit nervous because I had appointments this week. Of course all the appointments where canceled. We had no cell phone service for a few days. Numerous of times I tried calling the cancer center but I was unable to get through. I started to get concerned because I needed blood work to be done in the middle of this disaster. Yesterday, five hours it took to get in touch with the cancer center. Trying to reschedule all my appointments became really frustrating especially when I barely had service in my room. I wasn't going to stand outside in the freezing cold to try and get some reception. It was so upsetting and frustrating. Trying to make calls all day exhausted me. I seriously cant imagine how those of you who are going through treatments now felt. It is a scary situation especially newly diagnosed. I was so nervous I didn't even know what to do in the middle of the storm I packed all of my medications and documents. For the first time in my life I was petrified because I didn't know what was going to happen next. So I needed a plan.
Finally, today I had blood work done. I will call on Monday for the results. The last few weeks I havent been feeling all that well. Most of the time I still cannot keep my eyes open. Sleeping is still a problem as well. My heart races a lot and I feel like the medication just isn't working for me. Right now there is nothing I can do because I cannot get into NYC for appointments. Luckily today I was able to go local for the blood work because It had to be done asap.
The American Cancer Society has a list of coping support after a disaster
Coping With Cancer After a Natural Disaster: Frequently Asked Questions for Cancer Patients and Their Caregivers
It is so important to have a plan. Always have a bag ready full of medications, supplies etc.
There are thousands of people who are still without power and homes and it breaks my heart for those who need critical care. I have to say I was very disappointed in NYU hospital because there generators weren't working. They transported all there cancer patients to Memorial Sloan Kettering. Something like this is disappointing because it shows that they didn't care. They knew the generators weren't working. This should have been checked before hand. I am glad I don't go there for treatments.
I moved all of my appointments till later on in the month since transportation to NYC isn't possible since no one has gas and taxi's subways everything is still closed.
The last few days felt like I was in a movie! I never seen anything like this in my life.
Please stay safe!!!